Rally for Eden
Please donate a nominal amount towards this fundraiser.
The boy he is, the game he loves, and what this disease is taking from him.
Eden is an U10 player for Corduff FC and he has Limb Girdle Muscular Dystrophy Type 2C.
It is a rare genetic muscle disorder that causes progressive weakness and wasting, which can be life altering and limiting. He is the only known child with this disease in Ireland. Eden must travel to the United States to undergo gene therapy treatment.
That's why every cent matters, without treatment, Eden risks losing more and more of the strength that allows him to run, play and simply be a normal 9-year-old.